What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
1:01
YouTubeEB Research Partnership
What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
Thomas DiPalma is one of the many people living with Epidermolysis Bullosa (EB), often called “the butterfly disease” because of how fragile the skin can be. In this conversation, EBRP CEO Michael Hund helps break down what EB is and why it gives us both urgency and hope. We’re grateful to @NYSE and Ashley Mastronardi for taking the time ...
994 views3 months ago
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