NF2: Symptoms, Causes, and Treatments Explained #shorts
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NF2: Symptoms, Causes, and Treatments Explained #shorts
21 views9 months ago
YouTubeMedicine in 3 minutes
New progress in NF2 gene therapy ✨ CTF research published promising early steps toward a personalized gene therapy approach for NF2-related schwannomatosis—starting with patient-derived cells and advancing into more advanced tumor-like models. This research is still early, but it represents meaningful momentum for families living with NF2-SWN. Read what this progress could mean for the future: 🔗 https://www.ctf.org/news/nf2-gene-therapy-ctf-research-advances-a-promising-personalized-approach/ #
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New progress in NF2 gene therapy ✨ CTF research published promising early steps toward a personalized gene therapy approach for NF2-related schwannomatosis—starting with patient-derived cells and advancing into more advanced tumor-like models. This research is still early, but it represents meaningful momentum for families living with NF2-SWN. Read what this progress could mean for the future: 🔗 https://www.ctf.org/news/nf2-gene-therapy-ctf-research-advances-a-promising-personalized-approach/ #
2.1K views9 months ago
FacebookChildren's Tumor Foundation
NF2-related Schwannomatosis is a complex, rare disease. In this webinar, Dr. Bradley Welling and Dr. Evans walk us through the Diagnosis, Management, and Challenges associated to help our community better understand NF2. Check out the full recording here: https://nf2biosolutions.org/nf2biosolutions-webinars/webinar-back-to-the-basics-understanding-nf2/ | Cure NF2 Foundation
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NF2-related Schwannomatosis is a complex, rare disease. In this webinar, Dr. Bradley Welling and Dr. Evans walk us through the Diagnosis, Management, and Challenges associated to help our community better understand NF2. Check out the full recording here: https://nf2biosolutions.org/nf2biosolutions-webinars/webinar-back-to-the-basics-understanding-nf2/ | Cure NF2 Foundation
2.2K views11 months ago
FacebookCure NF2 Foundation
Jake's Story: LIving with NF2-SWN
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Jake's Story: LIving with NF2-SWN
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YouTubeChildrens Tumor Foundation
NF2-SWN & Balance Issues, with McKinnon Galloway
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NF2-SWN & Balance Issues, with McKinnon Galloway
1.7K viewsSep 16, 2025
YouTubeChildrens Tumor Foundation
Driving treatments for people living with NF1, NF2-related schwannomatosis, and schwannomatosis is at the heart of this work. Your support helps move science forward and brings answers closer. Give at go.ctf.org/donate and your impact will be doubled. Thanks to Pat Spencer, a dedicated supporter for over 29 years, who is matching donations up to $50,000 in honor of her son and grandson, who live with NF. Offline gifts (checks, DAFs, wire and stock transfers) will be matched once received and ver
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Driving treatments for people living with NF1, NF2-related schwannomatosis, and schwannomatosis is at the heart of this work. Your support helps move science forward and brings answers closer. Give at go.ctf.org/donate and your impact will be doubled. Thanks to Pat Spencer, a dedicated supporter for over 29 years, who is matching donations up to $50,000 in honor of her son and grandson, who live with NF. Offline gifts (checks, DAFs, wire and stock transfers) will be matched once received and ver
2.7K views9 months ago
FacebookChildren's Tumor Foundation
At the Children’s Tumor Foundation, everything we do drives treatments for people living with NF1, NF2-SWN, and SWN. The NF field is entering a powerful new moment—one where we have the potential to truly end NF. These CTF milestones show that bold ideas can become real solutions for every form of NF. The Future Starts Here. 🌟 A Second FDA-Approved NF1 Drug Gomekli (mirdametinib) won FDA approval — only the second drug ever approved for NF1 and the first for adults. The first FDA approved NF1 d
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At the Children’s Tumor Foundation, everything we do drives treatments for people living with NF1, NF2-SWN, and SWN. The NF field is entering a powerful new moment—one where we have the potential to truly end NF. These CTF milestones show that bold ideas can become real solutions for every form of NF. The Future Starts Here. 🌟 A Second FDA-Approved NF1 Drug Gomekli (mirdametinib) won FDA approval — only the second drug ever approved for NF1 and the first for adults. The first FDA approved NF1 d
1.3K views9 months ago
FacebookChildren's Tumor Foundation
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One of the First & Most Common Options 👇 🔍NF2 Treatment Series, Part 3: Monitoring Tumors #NF2Awareness #TreatmentOptions #StayTuned #NF2 #neurofibromatosis #raredisease
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Jake is raising his voice. CTF is driving the science. Together, we can ensure NF2-related schwannomatosis patients have more options, more paths forward, and more time. Progress in NF2 is accelerating — but funding must keep pace. 👉 Donate today: go.ctf.org/donate #EndNF #NF2 #NF2SWN #EndNF2 | Children's Tumor Foundation
2.2K views9 months ago
FacebookChildren's Tumor Foundation
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Scientists at our Centre of Excellence at the University of Plymouth are exploring a groundbreaking clinical trial. They're testing whether HIV and AIDS drugs can help people with Neurofibromatosis 2 (NF2). 🧬 Led by Professor Oliver Hanemann, this trial builds on research showing these repurposed drugs can reduce tumour growth. During the trial, patients will undergo a tumour biopsy and blood test before starting 30 days of treatment with the medications. After the treatment period, another bio
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Take Action this NF Awareness Month with CTF Ambassador Alexandra Norton
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